Beauty

Beauty

Wednesday, July 31, 2013

Houdini strikes again

We have been putting Megan in a very specific type of pajamas for more than a year now.  It is the only type she can't get out of.  If we put her to bed in anything else she will get completely undressed and then take her diaper off, all within a couple of minutes.

Last night our little houdini figured out how to take her diaper off without taking off her pajamas.  She was awake way later than she should have been so I went in to see what was up and everything was wet.  I have a solution, I am going to start putting a pair of training pants on over her diaper so that she can't get to the velcro.  I currently use training pants as bloomers for her so I have some on hand already.

Needless to say we had a very rough night - she went to sleep 2 hours late and then woke up at 4 and hasn't gone back to sleep.

Sunday, July 28, 2013

We have a walker

Megan is now walking most of the time.  She will start to crawl and I remind her to stand up and walk and she will do it most of the time.  Megan is now walking 90-95% of the time and doing an excellent job of it.

Thursday, July 25, 2013

Working things out

Megan continues to do great with walking.  If we are in an open space she will walk and walk and walk, hundreds of feet.  She is still struggling with walking instead of crawling/hopping in smaller areas like home but she is getting better when I remind her.

She was awake again at night two night's ago but right now she has had 9.5 hours and is still sleeping so hopefully her new dosage of meds is going to do the trick.

Monday, July 22, 2013

SLEEP!!!!

It is currently 7:09 am and Megan is still asleep.  She fell asleep around 8:30 pm so she is working on 10.5 hours of sleep right now.  Yay!  I joked with Will that she knew she had to see Beth (her PT) today and that she was going to have to work hard so she decided to get some sleep.

Hopefully this is going to continue and we won't have to increase her meds tomorrow because tonight is the last night on her current dosage if she isn't sleeping through the night.

Thursday, July 18, 2013

Catching up

The delay in posting has been because of Megan's sleeping issues and my resulting tiredness.  This is going to be as concise of an update as I can do for the past couple of months.

  • Megan had surgery on her trigger finger because it was getting worse instead of better and it was starting to hurt her.  The surgery went extremely well and she did amazing.  Her finger wasn't opening all the way and so we have had 2 follow-up appointments but have been given a month before our next one and it is looking pretty much perfect now.
  • Because of her sore throat from surgery she got orange sherbert (we had some) for the first time and loved it.  She also got to eat popsicles which she enjoyed as well.
  • Because of her exhaustion from only getting 1-3 hours of sleep a night for 4-5 weeks she stopped walking and talking and doing much of anything.  Thankfully, now that she is back to getting at least 7 hours a night she is back on track.
  • She can now stand up in the middle of the floor without assistance and she is walking again like crazy when she wants to.  She is definitely getting on her way to full independent walking.
  • Last week she really started to flourish during her speech sessions (again more sleep helps a lot).  She is using sign language and shaking her head yes and no
  • The sleeping issues were/are being caused by a severe iron deficiency which is causing her to have restless leg symptoms making her whole body twitch.  Her Ferritin level was 7.2 and needs to be above 50 to get rid of the symptoms.  She is getting 2 doses of iron a day to bring her level up.  In the meantime she is also taking a medicine to help suppress the symptoms, she is still waking up at night so her dosage was just increased two days ago.