Megan went back to school for a few days last week and then again today. She had a great day last Thursday but didn't go on Friday because she didn't sleep well and was struggling. She didn't go yesterday because it was a very rough day as well. Will said she was really struggling when her bath started and about halfway through she changed - calmed down and started acting like herself again.
She was up again last night for 3 1/2 hours which is better than last week but still not great. She did not sleep in to make up for the loss of time but she woke up happy and didn't nap. Her teacher said that she did okay today but that she wouldn't work on tasks she just kept shaking her head no. LOVE. I love that she was standing up for herself.
She continues to be very "chatty" and interactive. I have been working with her in spurts when I can after school. Yesterday and today I was able to spend a good 20-30 minutes with her. Both times it has been an "accidental" situation that I was able to take advantage of. Yesterday it was playing with a hangar on her closet doorknob and today it was the radio and lamp on my night stand.
I was able to get her to make eye contact, repeat the words "on, light, more" on request, as well as getting her to attempt new words. Repeating words is awesome and something that is a recent ability because of the new technique; attempting new words, difficult words that start with "g, h, f, ph" was HUGE!
Tuesday, January 13, 2015
Wednesday, January 7, 2015
Sleep is getting better
So after reviewing everything again we decided Megan's "gluten detox" was way too similar to a reaction so we dug deeper in our investigation of her new bread and it turns out she was in a full-blown reaction. One of the grains in her bread actually turns into salicylates when it is digested! Unbelievable! We were seriously overdosing her.
Yesterday was the first day without any of the bread and she did better last night. She was awake for 4.5 hours and slept in until she had gotten 8.5 total hours of sleep. This is huge progress from the previous night.
Despite the lack of sleep she continued to do really well during the day. She has been saying new words, playing by herself, asking to have her picture taken and laughing. She has been playing with Sam more and more and just doing really well. It is very obvious that her body was struggling to digest the gluten and she feels so much better when she is not eating it. I can't wait to see how she feels when it is finally all out of her body.
Yesterday was the first day without any of the bread and she did better last night. She was awake for 4.5 hours and slept in until she had gotten 8.5 total hours of sleep. This is huge progress from the previous night.
Despite the lack of sleep she continued to do really well during the day. She has been saying new words, playing by herself, asking to have her picture taken and laughing. She has been playing with Sam more and more and just doing really well. It is very obvious that her body was struggling to digest the gluten and she feels so much better when she is not eating it. I can't wait to see how she feels when it is finally all out of her body.
Monday, January 5, 2015
Detox is no fun
Megan is progressively sleeping less and less each night. She had been awake for 5-6 hours and getting a total of 7 or 8 hours of sleep until last night. She also completely stopped napping, at the same time.
Last night she slept for 3 hours, was awake for 5 hours, slept for 2 hours, was awake for 1 1/2 hours and then slept for 2 1/2 hours. UGH! It is nap time and she is NOT sleeping again (at least not yet, there is still hope for today).
This is either the gluten detox ramping up or possibly she is having issues with the gluten-free bread we are giving her and it is snowballing out of control. Based on how quickly this appeared, including the lack of a nap, I tend to believe it is detox.
Last night she slept for 3 hours, was awake for 5 hours, slept for 2 hours, was awake for 1 1/2 hours and then slept for 2 1/2 hours. UGH! It is nap time and she is NOT sleeping again (at least not yet, there is still hope for today).
This is either the gluten detox ramping up or possibly she is having issues with the gluten-free bread we are giving her and it is snowballing out of control. Based on how quickly this appeared, including the lack of a nap, I tend to believe it is detox.
Friday, January 2, 2015
Gluten-free progress - eyes! voice! attention!
Megan has been gluten-free for 4 days now, counting today. This afternoon when I got her up from nap something wonderful happened again. She looked me straight in the eyes and her eyes were aligned without her glasses on. In the 10-15 minutes we were in her room she maintained eye contact with me about 40% of the time, at least; and her eyes were in perfect alignment the entire time.
She had a clarity about her eyes - they seemed extremely connected to me.
We got this same results when we started her on the first enzyme a few months ago and it stayed around until we had to stop it for her testing; and for some reason it didn't return when we started it again after the testing.
She is verbalizing a ton today. She is approximating words on a consistent basis - just chiming in to say a word while we are talking to her.
Yesterday we had family over to play games and have dinner. We were playing games during nap time so when Megan got up there were several people sitting around the dining room table. Megan walked over to the table and climbed into an empty chair. She sat there and just listened to the conversation, watching each person as they talked. Every once in a while she would comment on something someone said by pointing to them and babbling/grunting in their direction. At one point they were playing with her new hot potato, throwing it around the table and she played with them; throwing it to something after it had been thrown to her. Eventually it was more fun to throw it over her shoulder away from everyone. It was awesome to see her interested in what was going on and participating when she could.
She had a clarity about her eyes - they seemed extremely connected to me.
We got this same results when we started her on the first enzyme a few months ago and it stayed around until we had to stop it for her testing; and for some reason it didn't return when we started it again after the testing.
She is verbalizing a ton today. She is approximating words on a consistent basis - just chiming in to say a word while we are talking to her.
Yesterday we had family over to play games and have dinner. We were playing games during nap time so when Megan got up there were several people sitting around the dining room table. Megan walked over to the table and climbed into an empty chair. She sat there and just listened to the conversation, watching each person as they talked. Every once in a while she would comment on something someone said by pointing to them and babbling/grunting in their direction. At one point they were playing with her new hot potato, throwing it around the table and she played with them; throwing it to something after it had been thrown to her. Eventually it was more fun to throw it over her shoulder away from everyone. It was awesome to see her interested in what was going on and participating when she could.
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