Tonight, for the first time, Megan hopped all by herself. She has been hopping for a very long time, but only when she had something to hold onto with at least one hand. Tonight she was a little hopping machine and she was having a blast! I videoed it and she was even fine with that. At one point she walked right up to the camera and then went back to hopping with her daddy.
She is continuing to do awesome eating at the table. She is doing extremely well with managing utensils and just sitting there like such a big girl.
We will be starting a new program with Megan soon to help her. We have begun implementing a tiny portion of the program and are seeing amazing results. The part we have started working on is with her eye contact. We are getting TONS more eye contact - so much more that it is difficult to comprehend how great she is doing. It is so nice to have her looking us in the eyes.
Tuesday, December 2, 2014
Sleep update and eating at the table
A little over a week ago Megan started struggling again with her sleep - she got to the point where she was up for 5-6 hours and was sleeping until 10:15 to make up for it. She is headed back in the right direction now and we are so thankful for that. She restarted her b2 and she got cst yesterday which visibly helped her while we were in the office.
This weekend I decided to let Megan eat her breakfast (cream of wheat) by herself to see how it would go. It has been several months since we last tried it, that time she took 1-2 bites and threw the spoon and then the bowl all three times we attempted it. On Saturday she ate 2/3 of her food before she dropped the spoon on the floor. She ended up finishing it after getting her spoon back. It was so exciting for her to do this by herself. She has been capable of feeding herself with a spoon for more than a year, that part wasn't the issue, the immediate throwing of the spoon and bowl was the problem.
After her success with her breakfast we decided to remove her tray and push her up to the table to eat for the rest of the day. Again, last time we tried this there was a lot of throwing of food and pushing off from the table so it didn't last long. Just like with the spoon/bowl attempt this time went so much better. In fact Megan has been eating at the table every meal since, except for one time. Last night she fed herself with a real fork while sitting at the table.
This morning she ate 3/4 of a bowl of oatmeal completely by herself. I was so proud of her and she is so proud of herself. She has been showing us that she wanted to be more independent lately and this just goes right along with it.
Saturday, November 22, 2014
Random Words
Megan has been repeating words/phrases the last few days. One day when I asked her if she was all done she said "ah un" immediately afterward. If I had heard it out of context I am not sure I would have recognized it but it was definitely clear.
Yesterday in the car she said "anta" for Santa (Sam was talking about it).
She has answered "nah" to questions a couple of times this week.
Yesterday in the car she said "anta" for Santa (Sam was talking about it).
She has answered "nah" to questions a couple of times this week.
Tuesday, November 18, 2014
Feeling great, gaining weight and granny
Last weekend we spent the afternoon at granny's house. At one point Megan pointed at her and said "anneee". There was no g or r but the sound was perfect. As per her usual self, no repeat on it. But it was awesome to hear her say it.
Megan has been feeling so great lately. She is still waking up every night but typically for less than 30 minutes and you can tell that she isn't struggling with digestion or exposure on a daily basis. Her coloring is better and she feels GOOD. She had an appointment with Dr. B. yesterday and she commented on how great Megan looked. She said, "you know I wouldn't have known that her coloring was off before, but compared to how she looks today man she was ashen/pale looking before. You can tell she feels so much better". Megan weighed 29.6 pounds and the scale jumped up to 30.2 a couple of times. Woo-hoo - go Megan go.
We have gotten to where we are today with her by removing all "extra" supplements. We just started taking them away one or two at a time until she stopped reacting. Each time we would take something away she would have 1-2 good nights and then go right back to struggling so we would take away something else until we got to the point where she stopped struggling. She needs all of the supplements we have removed so we are starting them back, one at a time, and spacing them out. So instead of getting iron every day she is going to get it every 3rd day and we will see how it goes. Once we have her established on it, or determine she just can't handle it then we will move on to the next item.
I have an appointment later this week to go over Megan's latest lab results which will tell us what else we need to get her going on - but hopefully these will help fix the problems so she stops having issues with the current supplements.
Megan has been feeling so great lately. She is still waking up every night but typically for less than 30 minutes and you can tell that she isn't struggling with digestion or exposure on a daily basis. Her coloring is better and she feels GOOD. She had an appointment with Dr. B. yesterday and she commented on how great Megan looked. She said, "you know I wouldn't have known that her coloring was off before, but compared to how she looks today man she was ashen/pale looking before. You can tell she feels so much better". Megan weighed 29.6 pounds and the scale jumped up to 30.2 a couple of times. Woo-hoo - go Megan go.
We have gotten to where we are today with her by removing all "extra" supplements. We just started taking them away one or two at a time until she stopped reacting. Each time we would take something away she would have 1-2 good nights and then go right back to struggling so we would take away something else until we got to the point where she stopped struggling. She needs all of the supplements we have removed so we are starting them back, one at a time, and spacing them out. So instead of getting iron every day she is going to get it every 3rd day and we will see how it goes. Once we have her established on it, or determine she just can't handle it then we will move on to the next item.
I have an appointment later this week to go over Megan's latest lab results which will tell us what else we need to get her going on - but hopefully these will help fix the problems so she stops having issues with the current supplements.
Sunday, November 9, 2014
Independence!
Megan has seriously got every adult at her school fooled. When I picked her up on Friday they told me that she did so great at recess and for the second time this week went down the slide by herself. What? She has been refusing to even slide and they have been buying it and sliding with her. When I told them she had their number she started laughing and put her hand over my mouth. "stop telling on me mommy".
Today we took the kids to the playground at Megan's school so I could video her sliding, on their equipment, by herself. We got SO much more than we bargained for. She had the time of her life. One of us followed her on the equipment (up the stairs, over the bridge, to the slide) and then slid beside her or stayed behind her while she slid down the slide. After doing this a few times and not having to assist her at all I decided to try it from the ground.
Megan has NEVER, NEVER, NEVER been on any playground equipment without someone behind her. She won't climb more than a stair or two without us right there and we won't want her on her own since she will just stop and start coming back down the steps without holding on which she isn't capable of doing yet.
Anyway, I let her go and I stayed on the ground and she did amazing. Will was on the other side of the equipment protecting the openings and together we had her covered. She climbed the steps, climbed up onto the bridge, walked/ran across the bridge and slid down the slide 100% by herself 10-15 times. On about the 10th time I took out my phone and videoed her (which she wasn't completely thrilled about); because she wasn't happy about me having my phone we had to encourage her along, but she still did it.
I shed some happy tears as I watched her do something for the first time; something that was a broadening of her independence.
Today we took the kids to the playground at Megan's school so I could video her sliding, on their equipment, by herself. We got SO much more than we bargained for. She had the time of her life. One of us followed her on the equipment (up the stairs, over the bridge, to the slide) and then slid beside her or stayed behind her while she slid down the slide. After doing this a few times and not having to assist her at all I decided to try it from the ground.
Megan has NEVER, NEVER, NEVER been on any playground equipment without someone behind her. She won't climb more than a stair or two without us right there and we won't want her on her own since she will just stop and start coming back down the steps without holding on which she isn't capable of doing yet.
Anyway, I let her go and I stayed on the ground and she did amazing. Will was on the other side of the equipment protecting the openings and together we had her covered. She climbed the steps, climbed up onto the bridge, walked/ran across the bridge and slid down the slide 100% by herself 10-15 times. On about the 10th time I took out my phone and videoed her (which she wasn't completely thrilled about); because she wasn't happy about me having my phone we had to encourage her along, but she still did it.
I shed some happy tears as I watched her do something for the first time; something that was a broadening of her independence.
Saturday, November 8, 2014
Doing well with lots to say
Megan has been doing well. She still isn't sleeping through the night but she is getting enough sleep that she is feeling good during the day.
She is contributing a lot more to conversations. She will shake her head or say something else in sign language in response to conversations that are being had in her presence. Today her nana was complimenting me on being a good mommy and Megan stood up and gave me a big hug and kiss. She was saying thank you or agreeing with her nana. It was very sweet.
She is doing this type of thing a lot and it is so fun to watch.
She is contributing a lot more to conversations. She will shake her head or say something else in sign language in response to conversations that are being had in her presence. Today her nana was complimenting me on being a good mommy and Megan stood up and gave me a big hug and kiss. She was saying thank you or agreeing with her nana. It was very sweet.
She is doing this type of thing a lot and it is so fun to watch.
Saturday, November 1, 2014
Carnival
Megan's sleep is progressing in the right direction - so she is coming off of the exposure from Wednesday's & Thursday's doctor's visits.
This afternoon we went to a carnival at a local church. Megan had so much fun on all of the rides and there were several she was unhappy to get off of when they stopped. She loves her rides and will likely be a roller coaster lover when she is big enough.
She is walking so well now you would hardly be able to tell that she ever struggled with it. She is confident and strong and balanced. She is doing tons of jumping just holding onto one hand - especially when she is super excited about what is going on. Needless to say there was lots of jumping at the carnival.
This afternoon we went to a carnival at a local church. Megan had so much fun on all of the rides and there were several she was unhappy to get off of when they stopped. She loves her rides and will likely be a roller coaster lover when she is big enough.
She is walking so well now you would hardly be able to tell that she ever struggled with it. She is confident and strong and balanced. She is doing tons of jumping just holding onto one hand - especially when she is super excited about what is going on. Needless to say there was lots of jumping at the carnival.
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