ER visit, getting stronger, sleeping better and TALKING

We spent 10 hours at the ER on Friday after the neurologist finally called us back.  After multiple x-rays on her legs, sonograms of her hips and blood work to check for infections we were told to go home and keep an eye on her.  As long as she continues to improve the assumption is that she injured herself and is slowly getting better - though seriously it is a weakness thing that we are seeing.

She is getting stronger throughout the day, each day.  She is not back to herself yet but she is walking a little bit here and there which is so good to see.

She is sleeping so much better - getting her 10 hours a night and feeling good.  She is even napping and has been waking up happy in the morning and at nap which always means that she has gotten the sleep she needs.

TALKING....Megan has been saying new words left and right.  She has said "hair" several times, "dog", "in",  "help, sounds like el" and confidently said "mama more, mama more" when I was feeding her at the hospital.  She is saying "nah, nah, nah" and "yah, yah, yah" on a very consistent basis and "out" and "on" a lot too.

Something is up with Megan's legs

Megan had a rough night last night.  She woke up and kept trying to go back to sleep and it looked like she would be almost asleep and then she would throw herself and cry for 3 or 4 minutes and then try again.  She did this for 1.5 hours while I was watching her and then Will took over and it was another 2.5 hours before she finally fell asleep; and then she woke up early, very early so she got about 7 hours of sleep maybe.  It was so sad to see her trying so hard to go back to sleep and not be able to help her.  We really need to figure out what is causing her issues this time so we can help her.

I had decided I was keeping her home because of the sleep thing and then when I went to get her it went downhill from there.  Last night we were playing in the backyard and Megan was struggling to walk in the grass; she used to struggle in the grass but on Sunday had been everywhere like a champ never once needing assistance.  We figured she was just tired and didn't think about it again.   This morning when I got her out of bed she stood but was leaning back on me completely.  I tried to get her to stand up on her own and she couldn't; she was very unsteady.  By the time breakfast was over she couldn't keep her legs straight at all - her knees just stayed bent and she would fall down when trying to stand or walk.

What I initially thought might be some sort of fluid in her ears causing balance issues quickly became WAY more.  Megan couldn't stand, she couldn't walk, she couldn't use her legs to climb up onto the couch or my lap.  After some research Will said to give her the l-carnitine again - I was planning on giving her both of her supplements again during lunch but immediately gave her the l-carnitine.

The other thing that was obvious was that her legs were bothering her - maybe in pain, or aching or weak or something because she kept hitting them.  I rubbed them a few times when she would let me and that seemed to help a little.  About 1.5 hours after giving her the l-carnitine she stopped hitting her legs but no other symptoms went away.

She was sitting in my lap on the couch and tried to get down and as soon as her feet hit the floor she would collapse under her own weight and the frightened look on her face was horrible.  She didn't understand what was going on - I just kept telling her that we would fix it - we would figure it out and her legs would be okay again.

The other thing we did was start her on the protein enzyme - this goes along with the research but hopefully it will help as well.

As of right now (she is in the bath) she still cannot walk on her own.  She can take 2-3 steps with me holding her hips tightly and taking most of her weight and twice has done it with me holding both of her hands.  She did stand up at the couch and take a couple of steps holding onto it as well.  We are still waiting to hear back from the neurologist (obviously not happening tonight). Her other doctors all feel that based on what I described he is the best one to help.

Based on everything Will read this is reversible, just not sure how many doses of supplements it will take to get her there.

Sadly I got to hear Sam say "Mommy, Megan's legs not working".  I told him they were very tired and he said he would do a good job being quiet so they could rest.  :-(  Love that boy's heart.

NOTES: restarted l-carnitine and iron and 1/2 AFP enzyme with dinner.

This has definitely enlightened us that her body is in desperate need of the supplements and we can't just stop them like other people can.

Possible talent

Megan burped today and when she did Sam said "Megan say book! Megan say book!".  He had no idea it was a burp and it definitely sounded like she said book.  So maybe she will be the little kid who can "burp talk" during family events to entertain the others.

Not a lot of progress on the sleep front

Megan is continuing to struggle with sleeping issues. None of the changes we made last week seemed to affect anything so it is very possible that they were not the culprit at all.  We made some more changes on Monday and she had a better night Monday night only being awake for 3 hours instead of 5+ but she stayed the same last night 3.5 hours awake.  What we did was take away her two newest supplements - carnintine and iron.  We will eventually try them again to see if there is any change.

She had her weekly appointment with Dr. B on Monday and the goods news is that she is continuing to do well and progress with her CST - we are not there yet but are close to being able to start going every other week.   I am happy that she is doing so well, it means that her head should be feeling better; it also means less trips to Dallas, less appointments and more just kid time.  

Hhhhhome and sals reaction

Yesterday I got the call that Megan was tired and needed to be picked up early.   When I got into the car after buckling her in she said "h h h hom".  She said a new word "home".  I was so excited for her.  I had the though that if she would say something new every time I picked her up early I would do it every day.  :-)

I kept Megan home from school today -she was up again and once again didn't sleep in.  I made the call before I got her up and then was glad I did.  She was "off" all morning - just fussy and cranky and struggling.  Based on her no longer sleeping in it appears the pattern is a sals build-up or an ingredient in something that she can't handle.  There are 3 possibilities - we increased her fish oil dose which has lemon in it; I made gfcf banana bread on the same day; I started mixing her enzymes for school in sunbutter.  We will be lowering her fish oil dose back down tomorrow, the banana bread is all gone (she ate a ton last night) and no school today and the next 2 days.  Hopefully she will recover and be back to her true self by Monday.

A really good day at school - almost all 7 hours

Megan made it to school before 8:30 this morning.  She was up last night but slept enough to get 10 hours again.  She was a happy little girl when I dropped her off.  Her teacher said she had a really good day again until about 10 minutes before pickup when she hit her head on the floor.  She was a tired little miss.

When we got home she devoured her snack and then I took her to her room to change her diaper and she didn't want to leave.  I asked her if she was tired and wanted to lie down and she said "yah".  I said okay but I have to put your jammies on to which she said "nah, nah, nah, nah, nah".  I did it anyway, telling her I was sorry but until she got past her fits it was necessary.  She wasn't happy when I left her room but 23 minutes later she was asleep.

Her teacher said she was verbally telling them no today too which is awesome.  She just started that again this morning at breakfast.

She is feeling good, or at least better

I blogged about Megan's good day at school and at home earlier.  Will and I were talking about it and discussing everything we noticed today.

1. Megan's eyes are in perfect alignment without her glasses on.  This has only been true about 60-70% of the time the past 3-4 weeks.  And even when it has been true it has only been for a short period of time.  They were aligned tonight for 3+ hours from the time I took her glasses off until she went to bed.  
2. She is responding to "commands", meaning she is stopping when told to stop, or coming when told to come, etc.  She did it without hesitation, and without fits.
3. She really wanted to watch videos on my laptop.  This has become a constant request of hers, with her often leaving the toy room, walking across the house straight to my laptop and asking for it.  Today she did this several times and when I told her "not right now", etc there was no reaction from her.  She went with me to do something else or just walked away on her own each time.
4. She was so very happy today.  My sweet, happy girl was back
5. She was happily playing independently, without me in the room
6. She didn't throw anything, well except her food for some reason that one remains an issue even when the other clears up

All of these things showed up when we started the first enzyme and they went away after the constant exposure issues.  There are a couple of reasons why they could be back - maybe because the exposure is lessening - though she is still under it at the moment; or maybe because we increased her phenol specific enzyme to 3 times a day (every meal) instead of just getting 1/2 cap twice a day. 

We are so thrilled to see her feeling better and hope it continues for her.  

Best day of school yet

Megan is still working through the scent exposure so she was awake for two different periods of time last night, thankfully she slept in this morning.  She got to school just in time for her 10 PT session.  When I picked her up her teacher said "she had a great day!  She had the best day she has had since starting.  Man, you can really tell when she feels rested; what a difference".

I am so glad that she had a good day - she had a great time after we got home too.  She played by herself or with Sam a lot; she responded well to being told no to something she really wanted to do (that hasn't been the case the past few days).

She sees Sam using the potty and has been asking to use it too.  She has gone on the potty a few times when we have placed her there but this is the first time she has show interest on her own.

NOTES: No-F at 3 per day; l-carnitine; no dd

I hate scents!

We took Megan to the store yesterday.  As I was walking around with her we were bombarded with scents like crazy - I immediately took her outside but unfortunately the damage was done.  She wasn't over the exposure from the day before so this exposure was really bad.  She slept for 2-2.5 hrs, was awake for 4 hrs and then slept for a little less than 3 hours.  Needless to say she will not be going to school today.


Sunday NOTES: started l-cartinine

Neighbor's laundry kept Megan up last night

She was up for 2+ hours last night.  Late yesterday afternoon we went for a walk in the wagon and when we went outside to get in the wagon the smell of someone's laundry detergent/fabric softener was so strong.  She sat in the wagon for a couple of minutes while Sam got his shoes on, etc and then we went for the walk and she was exposed again when we came home while we got her out of the wagon and into the house.

UGH!

On a roll

Megan got 10 hours of uninterrupted sleep last night.  This morning we took care of her fasting blood work for the next level of testing; it can take 6 weeks for it to come back.

Once again she got a 2+ hour nap and was asleep again right around 8p.  She is certainly taking advantage of the ability to catch up on sleep and I am so loving it for her.

Chris came over for a little bit today and Megan couldn't stop hugging and kissing him.  She sure missed her buddy.

NOTES: fish oil at lunch today due to blood work; bedtime floramyces at afternoon snack

Tired, happy and doing well

I got a text from Megan's teacher at 10a saying she was very sleepy.  I picked her up and she was certainly playing the part - just laid her head on my shoulder when I picked her up.  She was all snuggly while I talked to her teacher until I told her to say goodbye to her teacher.  At that instant she started shaking her head yes, repeatedly and waved with both hands and clapped and clapped and danced.  She was so excited to be going home.

She was super tired, she went to sleep 5-7 minutes after getting put in bed.

After an almost 2.5 hour nap she was feeling good again this afternoon.  She has grasped concepts the past few days that she didn't have before.

A couple of days ago there was a bowl with about 8-10 cheerios in it on a table in the living room (long story) which she had knocked into the floor.  A little while later she went over to the bowl and picked it up and was looking at it.  I was talking to her about what color it was, that it was empty, that it was upside down, etc.  I told her to pick up the cheerios and put them back into the bowl.  She just looked at me because there were no cheerios in site - they were underneath the table.  I was standing up so I used my leg/foot to point toward them and said "they are under the table".  She looked at my foot and then leaned forward and looked under the table; she reached and grabbed one cheerio and then turned the bowl right side up and put it in it.  She looked at me and I said "get the rest" and she did exactly that.

Today I told her to take my shoes off of my feet and she came over to my shoe and started untieing it and trying to take it off.  I helped her get them off and then a few minutes later I said "put your foot in mommy's shoe" and she did.


NOTES: increased noF to 1 cap bfast, 1 cap dinner; increase phoschol to 1 cap bfast, 1 cap dinner; no dd

She made it through the night!

Yippee!  Megan slept for 9 straight hours last night.  The only downside is that she woke up at 5:30 this morning, which will make for a long day for her.  I am thinking she will crash again after school today.

Hungry, hungry little miss

Staying on track - she was up for about an hour again last night and she woke up at 6am.  She got to school today in time to walk in with her teacher.

Megan has a bruise in her pel.vic area from jabbing herself when she was awake 2 nights ago.  She also kicked herself (dare you to try it) in the same spot.  When I picked her up from school today she was escorted by the nurse, the teacher and the principal.  I explained where it came from and how she got it.  They asked that I notify the nurse in the future of such items.  I commented that she has little bruises all over her thighs from the same situation and no one said anything about that and they just looked at me.  Maybe they were concerned that I was going to think it happened at school and flip out on them.

Megan was so exhausted when we got home from school that after being home for less than 15 minutes I put her in bed and 7 minutes later she was asleep.  I don't think she has ever fallen asleep that fast in her life.  I woke her up after a  little more than 2 hours so that she could eat dinner.  Man oh man she was such a happy little girl - she clearly needed some sleep.

She ate 1.5 burgers and some chips for dinner and I just cleaned out her lunch bag so I could get tomorrow's ready and she had eaten EVERYTHING I sent her.  This is the first time that has happened.  She was a hungry little monster today - :-).

Despite the late, 2+ hour nap she was asleep by 8:30.  Here's hoping she has a good night.


NOTES: started phoschol 1 cap at bfast; skipped afternoon floramyces due to nap

Much better night

Megan had a mid-morning appointment with her pediatrician today.  The doctor is concerned about Megan's height and weight (whatever!) when I saw that Megan was in the 1st% for both weight and height I did a little happy dance.  That girl has never made the chart - she has always been about an inch below it.  Yay Megan!

The appointment went so long that it didn't make sense to take her to school, so instead she got a 2.5 hour nap this afternoon.  Last night she was only awake for 53 minutes so we are definitely heading in the right direction, away from a reaction.

Megan had an off afternoon - she wasn't acting like she had gotten 11 hours of sleep and an additional 2.5 hour nap.  Hopefully it was just an off day and not something else going on.

NOTES: upped culture to two caps

1st big round of blood test results

I had the privilege of driving in Dallas traffic by myself tonight; which isn't nearly as bad as doing it with an unhappy little miss in the car with me.  I had an appointment with Dr. B. to go over Megan's blood work results.  These are the results from the three different blood draws she had a few weeks ago.  I was expecting the results to be "bad", meaning for there to be several things that are outside of the normal range; obviously her body is not processing things well or we wouldn't be where we are today.

Dr. B. was so kind as to start the appointment off by saying "these are bad.  I mean I was expecting bad, I shouldn't be surprised based on what you tell me about her...but these are BAD!".  Thanks a whole heap lady.  :-)

Basically there are several items (alanine, glycine, iron, seratonin, etc) where Megan is way off the chart either high or low.  A lot of the items are related to the methylation cycle which was expected based on her other test results.  She does have the MTHFR gene mutation (this test showed that) and so the items relating to the methylation cycle relate to that.  There are 4 different areas that the cycle involves and she has something askew in every area.  In order to determine what is causing each item to be off we have to do more testing.  We can't just treat the area that is high or low because without further testing we can't be sure what is causing the issue.  For example, her serotonin is crazy high but that number could be high for various reasons: either she isn't processing what she is making and thereby storing the excess, or she is making too much and is using what she can and can't get rid of the excess, or the next step in the cycle (melatonin) isn't pulling what it needs and there is excess, etc.  You can see why we need to know why she has so much before treating to know exactly where the breakdown is in the process.  This is the case for every "off" item in the methylation cycle.  The testing for the methylation cycle takes about 6 weeks to get back once we complete it.  In the mean time we will continue to work on getting everything in her current treatment plan going.  There are supplements that might help her with some of these issues once we get them on board.

There are a few other items that are askew that don't have anything to do with the methylation cycle.  We will be addressing these items with her pediatrician tomorrow and will take it from there.  Some of them have shown up on previous tests and when we asked about them we were told it wasn't a big deal, etc that some people just make more or less of those items.

We still need to figure out a way to get some DNA results back for Megan so I will be speaking to her geneticist office again tomorrow.

First full day of school

I got a phone call around 10 that Megan was hitting her head, kicking herself, etc.  Her teacher said that as long as she was getting one-on-one attention she was acting fine but as soon as the person working with her left her to go to another kid the behavior would start.  I told her that it sounded to me like Megan was pitching fits for attention, as opposed to being in reaction mode.

Immediately after talking to me it was time for PT, followed by lunch and then playground.  This string of fun things must have broken the cycle because she made it through the day and her teacher said she had a great afternoon.  Today was the first day that Megan went to school for a full day.  She got to school 2 or 3 minutes after 8 and made it all the way until 2:45.

Tomorrow is Megan's 5 year well-check visit and the appointment is at 10 so unless it is a very quick visit she will be off school tomorrow.  :-)

NOTES: no new things today; no dd

She didn't make it through the day

Megan was on the right track, meaning her body was slowly getting rid of the toxins she was exposed to.  And then she went back to school.  I got a call from her teacher that they were seeing behavior from Megan that they had never seen and they were concerned.  Megan was lying in the floor, hitting her head against the floor.  She was also throwing herself down and crying.

MAN!  I knew she was getting exposed to something at school.  I knew the doctor's office was exposure but for her to not be getting better at all during the week there had to be something at school too.  I told her teacher that she was in reaction mode and I would come get her.  She was at about 60% reaction mode when I got her; the 4 minute car ride home felt more like 20 minutes.

We had an hour until it was time to go the doctor's office.  They had agreed to not turn on the fragrance at all today so the office would be without fragrance over the weekend and all day today.  I called to confirm that they hadn't turned it on and since they hadn't I went ahead and took her in.

It was a rough ride there and back but for the first time I didn't smell anything in the office.  I was definitely pleased that we wouldn't be making Megan's levels worse while we were there.

We will wait to see what kind of night she has tonight before deciding whether or not she will be going to school tomorrow.  She really needs time to detox and I NEED to spend some time in her room and around the people who are with her to figure out who/what is the source of the issue.

On a happy note we got our play iPad back from the "shop" today.  The kids haven't been allowed to play with it for a couple of months because the volume broke and it would go up to maximum volume and stay there.  I had started configuring it before I got the call about Megan so I only had 2 games on it but I figured it might help her today.  She was so over the top excited to see it that she squealed and yanked it from my hands and started tapping everything on the screen.  It definitely is the reason she made it through the appointment today.

NOTES: added 1 cap culturelle; no dd

Back to school

Last Friday I kept Megan home.  When I went to get her out of bed she didn't want to get out.  I took her out, changed her diaper and put her clothes on her and she climbed back in bed.  For ten minutes she stayed in bed not wanting to come out no matter what I said; that is until I told her that she wasn't going to school that day.  Upon hearing that she climbed right out and walked out of her room.

Once downstairs I put her in the toy room with Sam and started making her breakfast.  About a minute later Sam said "you going to school today Megan" and she instantly burst into full-on tears.  I immediately corrected the situation and told her Sam didn't know it but that mommy had already told her she wasn't going to school and she was staying home.  She immediately stopped crying.

Those two situations were both sad and good.  Sad because she was so tired and didn't feel well and probably knows that something at school makes her feel bad so she didn't want to go; and good because once again she showed that she knows what is going on and understands what is being said to her.

This morning I was trying to avoid what happened on Friday so I was all happy - You get to go to school today yay!!!!.  She wasn't excited like she was the first week but she didn't burst into tears either; progress.

Slowly headed in the right direction

Megan was awake for almost 4 hours last night but she only woke up once which is progress.  From here, assuming no new exposure (huge issue at the moment), the amount of time she is awake should decrease each night.

We woke her up at 4:30 after a 3 hour nap because she needed to be able to go to sleep tonight.  She fell asleep a little late, 8:45, but no where near as late as it could've been with that nap.

She had a great afternoon.

NOTES: remembered bedtime dose of floramyces tonight; dd 1p

Update

Another awful night for my sweet girl.  She slept for 3 hours, was awake for 3 hours, slept for 2 hours, awake for 1 hour 15 minutes.  Thankfully she was able to sleep in to get a decent amount of total sleep though I am sure it doesn't feel that way to her.

Today we are starting her protocol, meaning one by one we will be adding all of her new supplements.  The plan is to do one at a time for three days and if we don't see any side effects we will start another one, and so on until we have added everything she needs.

We went to the horse farm but it is not going to be an option for her right now.  They do not have an indoor arena and she just can't handle riding a horse, outside for an hour.

She is getting her appetite back, which is so good to see.  She has lost a little over a pound this past week and for her that is 5% of her body weight.

NOTES: started floramyces; increased no F to 1 cap per day

Playing hooky with mommy and Sam

Megan had a pretty good day, especially considering her night.  She got a 2 hour nap, which was helpful as well.

I kept Megan at home all day today, protecting her from any exposure so that she could start to detox.  We plan on going to an event at a horse farm tomorrow, but otherwise we will be keeping her home as much as possible this weekend too.

As part of the "investigation" into what is behind Megan's salicylate/chemical sensitivity issues we had a DNA test done using saliva.  The first test failed so they sent us another test kit for us to try again.  We found out today that her second test failed, the company said that some people just don't have enough DNA in their saliva for testing purposes.  The seems nutso to me, but oh well.  We are waiting on another option from her doctor so that we can try again with another company.

Her blood work is finally all in and I have an appointment next Tuesday to go over the results.  Tons and tons of things were tested and one of those is the MTHFR mutation.  It won't give us the information we need for treatment purposes, the additional DNA testing is required for that, but it will tell us if the mutation exists.

NOTES: b-1 IC, pro, 3ml oil; l-1 IC; d-1 IC, 1/2 no F; dd 330

Thursday update

Thursday update: Megan was tired yesterday because once again she didn't sleep in to make up for being awake during the night.  This is never a good sign, it means that she is continuing to be exposed to something at school.  Megan had an appointment with Dr. Brooks and they had replaced the scentsy that day and turned it off at 1p and thought that would be enough time for it to dissipate before Megan got there.  The smell was so strong that Megan lost it halfway through the appointment.  She was crying and squirming and fussing and just couldn't take it.  If it had been any other appointment I would have scooped her up and ran to the car, but she needed this appointment.  As expected Megan had a horrible night - way, way, WAY worse than any recent night.  She screamed non-stop until the moment she fell asleep.  She slept for 2.5 hours and woke up for 1.5 hours and then slept for 2 hours and woke up for 2.5 hours.  She didn't sleep in and had a rough morning and is currently flipping out in bed.  I kept her home from school because she is tired, and she needs a break from whatever she is being exposed to at school and she needs REST.

Thursday NOTES: b-1 IC, pro, 3ml oil; l-1 IC; d-1 IC, 1/2 noF; dd 6:30

Geneticist and back to school

Megan had her appointment with the geneticist this morning.  When I scheduled the appointment 5 or 6 months ago she wasn't having the sleeping issues she has been experiencing for the past 1.5 months.  She was occasionally reacting to something and then after a few days we could get her back on track.  We have no idea why we can't get her back on track this time except for possibly just being exposed at school on a daily basis.

Anyway, her appointment was at 8a so that we didn't have to wait if the doctor was behind.  We had to wake Megan up early in order to get to the appointment on time so she only got 6-6.5 hours of total sleep in 3 hour increments.  She was tired at the appointment, but we made it through.  The appointment lasted two hours and was incredibly frustrating.  They put us back on time and did vitals right away and then it was 27 minutes before anyone else came in the room and that portion took 15 minutes and then it was 40 minutes before the doctor came in after that.  No matter how many times I explained Megan's salicylate issues the doctor just didn't seem to get it.  She was surprised every time I made a reference to Megan not being able to eat something.

The next step is for her to order a "complete" genome test for Megan.  She will send the list of Megan's symptoms, etc and then the lab will test the genes they think relate to them.  The test is extremely expensive and not all insurance companies will pay for it so they are going to check with ours and let us know so we can make a decision before doing the test.

Megan went back to school today, despite being tired, and did well.  They said it was apparent she was tired but as long as they kept her busy she did okay.  That was not the case after we got home - she just couldn't function any longer so I put her down and she was asleep by 4:30.

She drank 3 full cups of water by the time I picked her up at 2:45.  That is in addition to the 1/2 cup she drank at home during breakfast.  She barely ate any breakfast, ate only half of her lunch and ate about a normal size snack at school.  She ate 2 small vanilla cookies for me for her afternoon snack.  Dinner was a success!  She ate 1.5 jr. burgers and at least 1/3 can of green beans.  She drank another 1/2 cup of water so 4 cups today.


NOTES: b-1 IC, pro, 3ml oil; l-1 IC; d-1 IC, 1/2 noF; dd 5p

A good but slightly off day

Megan was up again last night and didn't sleep in again so she got hit by the tired stick around 11:30.  It took her forever to fall asleep and then she got almost a 2 hour nap.  She didn't eat well for the second day in a row.  She only ate about 50% of her normal amount.  This is the second day in a row of her decreased appetite.  Today she drank WAY more than her normal as well.

Megan had a good day but was a little off here and there at times.

NOTES: b-1 IC, pro, 3ml oil; l-1 iC; d-1 IC, 1/2 noF; no dd

Visit with Dr. B and more new foods

Megan was up for about 2.5-2.75 hours last night.  I intervened immediately, within 5 minutes, of her waking up and went in and calmed her down and changed her diaper.  The last time I did this she was awake for less time than she had been the previous nights; this time she was awake for more time.

We saw Dr. Brooks this morning for a regularly scheduled appointment.  This was supposed to be our first week to go to once a week appointments but due to the head trauma we will see her again on Thursday.  I emailed her office on Friday just to let them know about the concussion so they would be prepared when we showed up today.  She took one look at Megan's head/face and said "oh man".  I gave her the details and filled her in on how Megan has been doing.

For the first time since Megan's initial visit she really didn't like her head being messed with.  Dr. B. was very caring and easy with Megan, reassuring her and going slowly.  She said that her frontal area was back to a 3 and that behind her eyes and ears were worse as well.  She said that she can compare Megan's head to her previous visit from Thursday and she hit her head HARD!  I know.  ugh

Megan was very tired on the way home and went to bed shortly after getting home; after getting interrupted for a diaper change she took a 2-2.5 hour nap.  She woke up so quiet I didn't realize she was awake.

I baked some new diary free, gluten free snack items today and Megan loved them.  I am just winging it and so it is great that she is enjoying the results.  Today she had soft pretzel bites, vanilla wafer cookie and the same crackers I made the other day but today I put garlic in one batch, onion in one batch and then left one batch plain.

She had a good afternoon, no fussiness like this morning; she was definitely feeling better.  She was chewing everything, I checked her molars and didn't feel anything but I think they are on the move.

NOTES: b-1 IC, pro, 1.5 oil; l-1 IC; d-1 IC; CST, adjustment, dd 1p; tested additional new snack items