Geneticist and back to school

Megan had her appointment with the geneticist this morning.  When I scheduled the appointment 5 or 6 months ago she wasn't having the sleeping issues she has been experiencing for the past 1.5 months.  She was occasionally reacting to something and then after a few days we could get her back on track.  We have no idea why we can't get her back on track this time except for possibly just being exposed at school on a daily basis.

Anyway, her appointment was at 8a so that we didn't have to wait if the doctor was behind.  We had to wake Megan up early in order to get to the appointment on time so she only got 6-6.5 hours of total sleep in 3 hour increments.  She was tired at the appointment, but we made it through.  The appointment lasted two hours and was incredibly frustrating.  They put us back on time and did vitals right away and then it was 27 minutes before anyone else came in the room and that portion took 15 minutes and then it was 40 minutes before the doctor came in after that.  No matter how many times I explained Megan's salicylate issues the doctor just didn't seem to get it.  She was surprised every time I made a reference to Megan not being able to eat something.

The next step is for her to order a "complete" genome test for Megan.  She will send the list of Megan's symptoms, etc and then the lab will test the genes they think relate to them.  The test is extremely expensive and not all insurance companies will pay for it so they are going to check with ours and let us know so we can make a decision before doing the test.

Megan went back to school today, despite being tired, and did well.  They said it was apparent she was tired but as long as they kept her busy she did okay.  That was not the case after we got home - she just couldn't function any longer so I put her down and she was asleep by 4:30.

She drank 3 full cups of water by the time I picked her up at 2:45.  That is in addition to the 1/2 cup she drank at home during breakfast.  She barely ate any breakfast, ate only half of her lunch and ate about a normal size snack at school.  She ate 2 small vanilla cookies for me for her afternoon snack.  Dinner was a success!  She ate 1.5 jr. burgers and at least 1/3 can of green beans.  She drank another 1/2 cup of water so 4 cups today.


NOTES: b-1 IC, pro, 3ml oil; l-1 IC; d-1 IC, 1/2 noF; dd 5p