Last weekend we spent the afternoon at granny's house. At one point Megan pointed at her and said "anneee". There was no g or r but the sound was perfect. As per her usual self, no repeat on it. But it was awesome to hear her say it.
Megan has been feeling so great lately. She is still waking up every night but typically for less than 30 minutes and you can tell that she isn't struggling with digestion or exposure on a daily basis. Her coloring is better and she feels GOOD. She had an appointment with Dr. B. yesterday and she commented on how great Megan looked. She said, "you know I wouldn't have known that her coloring was off before, but compared to how she looks today man she was ashen/pale looking before. You can tell she feels so much better". Megan weighed 29.6 pounds and the scale jumped up to 30.2 a couple of times. Woo-hoo - go Megan go.
We have gotten to where we are today with her by removing all "extra" supplements. We just started taking them away one or two at a time until she stopped reacting. Each time we would take something away she would have 1-2 good nights and then go right back to struggling so we would take away something else until we got to the point where she stopped struggling. She needs all of the supplements we have removed so we are starting them back, one at a time, and spacing them out. So instead of getting iron every day she is going to get it every 3rd day and we will see how it goes. Once we have her established on it, or determine she just can't handle it then we will move on to the next item.
I have an appointment later this week to go over Megan's latest lab results which will tell us what else we need to get her going on - but hopefully these will help fix the problems so she stops having issues with the current supplements.
Tuesday, November 18, 2014
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