10 months of catchup

Megan had a rough few months.

Megan wasn't able to handle any of the supplements we gave her despite being in desperate need. We eventually switched doctors and the new one immediately knew what was going on.  She said that anytime she has come across a kid who couldn't handle their supplements it was because their body wasn't able to detox.  She referred us to another doctor and together we started working on detoxing Megan's liver and kidneys.  This is when things went south for her.

We pulled her out of school in March to start a Sonrise program with her.  I was able to run the program with her for a few weeks and she responded amazingly well.  She was giving eye contact, saying new sounds/words, cooperating, etc.

Once the detox started I could no longer work with her on the program because she wasn't in a position to do it.  Over the next few months I was only able to spend 10-15 minutes once or twice a month working the program with her because of her response to the detox.

Thankfully overnight (literally) she turned the corner and started getting better.  She is doing really well right now, though we still have small setbacks every 2-3 weeks for about 2-3 days each time.

She turned 6 since my last update and has grown a little as well.  In the last few weeks we have added a functional neurologist to Megan's team and he has been getting amazing results.

Megan is stronger, more balanced, calmer and happier than ever on a more consistent basis.  There are still some areas where improvement is needed and we are working on how to address them.

Some of the things that have changed with her over the past few months:

• no longer needs orthotics
• her gait is now where it should be
• she is following requests, instructions, etc the first time, most of the time
• setback days not included she is no longer injuring herself during the day
• her sleep has improved to waking up 2-3 times a night for 30-60 minutes a time
• her anxiety about things has decreased to the point that she will just walk away while controlling her reaction instead of completely losing it, unable to calm down
• she can swing on the regular swing ALL BY HERSELF

I am sure there are many more that I am missing.