Megan woke up twice last night. The first time for 20 minutes and the second time 3 hours later for 1.5 hours. She then slept in until 9:30. She woke up a few times between 6:30 & 9:30 and went right back to sleep each time.
This morning after breakfast I noticed that Megan was looking at me a lot. I mean looking me in the eyes for 30+ seconds at a time constantly. I took out my phone and she let me take a picture of her without freaking out. She hasn't liked pictures for months so if I take one she is generally yanking on her ears or completely turned away in them.
She was fighting me with her glasses so I let her take them off for a few minutes to see what would happen and I got more than I bargained for. Her eyes were aligned and she continued making eye contact. Her eyes are never aligned when she isn't wearing her glasses, especially with the stronger prescription. The moment her glasses are off her right eye turns in. So, eyes were aligned, her eye wasn't shaking and she maintained eye contact. I decided to grab the camera and see what would happen. Not only did she let me take photos, she kept asking for more each time I tried to put the camera down. I have close to 150 photos of her and with the exception of the ones where she is looking at Sam or something she is making perfect eye contact in every one and her eyes are aligned in every one. AMAZING.
FG said that benzoates could cause the eye issues she was having so we have pretty much eliminated them (can't totally because of how sensitive she is to her other options) but we didn't see any difference. She has had 2 doses of the enzymes to help her process them and her eyes look wonderful.
She went down for nap and pulled on her ears a few times before I got out the door so I put her arm bands on her and then she started screaming but stopped before I got to the bottom of the stairs - so less than a minute.
I think I might hug the doctor at her appointment tomorrow.
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