I know that Megan was still asleep at 11:40ish because I hadn't gone to sleep yet.  At 3am Will woke up and noticed that the monitor volume had been shut off and he turned it back on.  Megan was asleep at that time too.  So we know she slept until at least 12a and from 3a- when she woke up.  Not sure at what point she made a noise and Will turned off the volume or how long it lasted.  She woke up around 8:15 very happy.

We had our appointment this morning to discuss Megan's treatment plan.  We will be doing urine, stool and blood tests by Monday.  We have to stop her current enzyme for 2 days (usually 10 but she hasn't taken that much) before we can do the tests so have to get them done by Monday so she isn't off of it for too long.

After the testing we will be adding back the enzyme and then increasing the dosage until she is taking it with all three meals.  We will also be adding a probiotic, vitamin and fish oil.

The doctor said she got chills and teared up when I told her about Megan's eyes yesterday and this morning.  She said it means two things to her: first that Megan really needed some help and second that we are going to see good results with her and quickly.

I really hate that we have to stop the enzyme because it is helping her so much and it feels mean; but the test results won't show a true picture with them in her system.