Megan had an extremely rough night. Not only was she up for 4 hours 15 minutes but every 30 minutes she would be almost asleep and then start screaming again. Ugh! She finally got back to sleep at 5am so I wasn't expecting her to make it to school. She woke up around 8:30 and was very unhappy but calmed down after 8-10 minutes. I got her up and she was good to go. She didn't seem tired, she was doing okay.
She ate all her breakfast and was playing well. I asked her if she wanted to go to school and she didn't say no, and she had told me no not that long. I had been offering her the Y and she kept pushing it away and on my third try she said "NO" and threw it across the room. I apologize and said "I got it".
I took her to school just before 10 and she made it through the day. I was planning on picking her up at 1 but her teacher said she was fine. She completely broke her glasses during pick up, after having broken the nose piece yesterday.
Will and I went to the doctor to get Megan's first round of test results (urine/stool). The doctor said "you are definitely on the right track with salicylates and if you are not already you should be looking at oxalates too". Bahahaha. Lady I am not making up what happens to her when she eats these things; imagine what the numbers would've looked like before we started FG. Her Benz were high too. There were a LOT of indicators that she likely has a MTHFR mutation - we are still waiting on the DNA results for that information. Based on the symptoms of that mutation I, and the doctor, would be shocked if she didn't have it. It explains so much - all of her major issues are on the list of symptoms, including her over the top sensitivity to chemicals. Her vitamins are all over the chart (she isn't able to process what she eats, again no brainer), and her enzymes are off as well. The good news is she doesn't have candidia - yay! She has one type of yeast that is a little high, but not out of whack yet, so doing preemptive treatment. There was a bad bacteria that was off the chart - we are consulting with her pediatrician on that one to address it. We are treating everything with a series of supplements working our way up to 11 at breakfast, 7 at lunch, 6 at dinner and 2 at bedtime. Some of them will be discontinued over time (30 days, 90 days, 4 months) as issues resolve.
I am working on a delivery system to get all of these things into Megan. They are all in capsule form so that we avoid flavorings but that is making it more difficult to get them into a substance that she will accept. We are ramping up slowly, adding 1 thing every 3 days.
NOTES: b-1 IC, pro, 1.5 oil; l-1IC, d-1IC; day 2 no dd
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment