Beauty

Beauty

Saturday, August 2, 2014

Where's my enzyme??

Tonight was the first night we didn't give Megan her new enzyme.  We had to do this so we can have her tests run in a couple of days.  I was dreading this because the enzyme has made her feel so much better and I felt like it would be mean to take that away from her.

It has already been much worse than I expected.  She was restless and aggressive before bed.  She was trying to get relief by kneeing herself in the mouth (her new thing in bed since she can't get to herself with her hands).  She took a 2.5 hour nap and woke up late so I knew she wasn't going to be thrilled about going to bed but I wasn't prepared for an hour and 10 minutes of screaming and crying.  And such a sad, I am in pain, cry too.

I can only imagine how confused and upset she must be to be in pain again.  It was very difficult to sit through knowing that she has at least 3 more days until we can give her the enzyme again.

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